accept the past

Aireals Agendas' mission is to overcome the never-ending challenges that arise while enduring life with epilepsy.

Hey everyone, I started Aireals Agenda to help alleviate some of the stress that comes from living with epilepsy. Suffering from a severe seizure disorder since infancy she has never been able to live a "normal" lifestyle and dreams of the day that she will be free from the burdens of her condition.

Aireal requires 24hour supervision and is restricted from the most trivial of tasks, such as bathing alone or cooking a meal for herself. This leaves her feeling alienated and set apart from the world. She tends to spend most of her day dreading the next seizure to overwhelm her while I struggle to provide for her a better life to look forward to.

We have a lot of out of pocket costs to cover gas, hotel, food, medical expenses after insurance and all other expenses needed for the trips back and forth to the hospital.

If you do not already know Aireal, or her story, click the buttons below to learn more about the woman she has grown into.

accept the past

Hello, world! My name is Aireal Clemons. I'm a twenty-five-year-old woman who turns twenty-six on December the twenty-ninth! As a young child, I was raised by my father Clarence and oldest brother, James. I wasn't allowed to see my mother very often, sometimes it felt like years between her visits. Being a child though, I didn't think too much about it.

I received my first seizure diagnosis when I was only three, febrile seizures, which are seizures that occurred whenever I run a fever. My father had always wondered what was wrong with me, but the doctors assured him that this was common among children and that I would soon grow out of them.

I was a quiet child, so quiet that it seemed at times you'd have to pry my mouth open to get me to say anything at all. Still, I had a somewhat "normal" life in my early childhood. I loved playing outside making mud pies, just being in the dirt and trees altogether. I hadn't learned about the T.V. yet.

When I was five and playing in the dirt, my big brother worked up in his treehouse, when he shouted at me like brothers and adults tended to do. "Move out of the way!" I did... but instead of moving away from him, I moved underneath the treehouse because I was curious and figured he'd toss any boards further away.

That curiosity led to getting my head busted open by a two by four! Yelling at my brother the whole time, my dad packed a rag into the wound and applied some pressure to my head to stop bleeding. My dad didn't believe in going to the hospital, at least not yet.

After that event is when the staring spells first appeared. Outside of the occasional need to get my attention because of my gaze remaining fixated for a bit too long the remainder of my preschool days passed without event.

Once in school, the teachers began noticing that I was not developing at the same speeds as the other children. I was misdiagnosed with ADD and given Adderall. I did not like taking the pills and still remember when I caught my dad mixing it with my apple sauce before sending me to school.

My dad stayed busy working and would take me along with him when he was in town. I'd be allowed to play in the sand when the roofers weren't using it that day; I enjoyed those days and they are some of the fondest memories I have of that time. When he wasn't working, he was in jail. I remember being told that he was "gone right now for driving without a license." Hindsight being twenty-twenty, how many times can you go to jail for driving without a license?

Around seven years old I started getting sicker. I stayed ill all the time, not showing much improvement in school, I started seeing a family therapist hoping that would help... but it didn't. That's when I started playing outside less and throwing up more.

On one occasion, I suffered a "severe asthma" attack, completely lost my voice, and was running a fever of one hundred and three degrees. In a panic, my dad and his current girlfriend wrapped me up in some towels and stuck me in a tub of ice. Of course, after the fever had run its course everything went back to normal. I got lucky that day, I was never taken to the emergency room and being just another moment of my childhood, I never really thought about it until now.

It seemed my dad was starting to become cold. When I was younger, he tried to be a good father, but as it became clear that I did not come without complications, he became more distant and indifferent. As an adult, I can see how it can get frustrating but that is no excuse for my growing up without my daddy.

The doctors' appointments became more frequent, and my babysitters' house became more of a home than my own. Then in the fourth grade, my dad along with Bel-Air elementary school decided to hold me back. I was placed in the Early Intervention Program (EIP). This helped a little since I was around fewer people, nevertheless, I still couldn't stay focused on just one specific thing at a time.

When I finally reached the fifth-grade things were a little better. I had made several friends, my dad was home more often, and my brother was busy just being a teen. Still, I can't say it was "great" though. By that time, I had started learning more about money and what being wealthy is like, questioning the reason why we did not have what others seemed to have.

Many of my friends lived in nice subdivisions. I noticed that we didn't have certain things where I lived, such as an inground pool, or an upstairs, nor big rooms. Because of this, I loved to ask my dad to go for sleepovers. I got to swim, giggle with the girls, get my nails painted, and even making snacks, Christmas ornaments too. I couldn't do that with my big brother. He was sixteen and busy enjoying the movie theatre across the road, rollerblading with friends and yes, even getting on my nerves. I so badly wanted what my friends had, I didn't understand yet why there are some things I just couldn’t have, but that would soon change.

When I was twelve my behavior began changing. I thought I was being a normal twelve-year-old girl, but displaying more attitude caused my dad to turn further away. Things were changing, our house was being torn down for new businesses, he knew how much I missed my mom, and his little tomboy was becoming a young woman. Spotting his out, he asked me and my brother if we wanted to go live with our mom.

Of course, we said yes! After about a year, while sitting at my aunt's house, I had my first period. I was still having moments of staring off into space but surprisingly, I was doing well enough in school. My grades were never perfect, but I usually managed to keep them good enough to keep progressing. Now that I was in middle school, I was put back into regular classes, some were a bit harder but that's what school is about. Do you know what I mean?

The eighth grade was my best year of school and I have to say the easiest. I had made a few good friends, even if we were the ones that didn't get noticed very often. Near the end of that year, when Cowan Middle School held its eighth-grade ball called the Going Away Dance. My mom and stepdad took me to that dance, where I was awarded, "Queen" for the year! It felt so nice being noticed for once. My family was still not wealthy, but I was learning to live with it... well, sort of.

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Giving feels good. We've all experienced the rush from doing something good.
Whether from donating our used books to the library, feeding the hungry at the soup kitchen, visiting an older relative, or giving someone a very personal and meaningful gift that they enjoyed.

Want to make a difference but don't have much money to spare? There are many ways to give that don't involve a lot of cash.

Local Love

  • Downsize & Donate

    We have struggled to establish ourselves since starting our lives together in Rossville, Ga. The strain of her condition defines our lives and leaves us with little time, assets, or the energy to commit to advancing our situation. If you have some stuff to get rid of, consider giving it to Aireal rather than throwing it out.

  • Unpack The Pantry

    Running Aireal to medical appointments and working my day job leaves little time to visit the local food pantry and when I do find the time, the pantry is usually not open for business. We often eat sandwiches and Raman in this household. You might be wondering which items we need. Anything unopened (and not expired) with a long shelf life is welcomed, but items high in protein are always in demand. If you wish to donate non-perishable items we would love to schedule a convenient pickup time and location.

  • Perishable Pickup

    We are happy when we can go to the cupboard and grab a can of beans, however, it is just part of a wholesome meal. A good meal requires a trip to an often empty refrigerator. If you wish to donate meat or grocery items we would love to schedule a convenient pickup time and location.

From Far Away

  • Gift Card Regift

    If you know it's unlikely you'll redeem a gift card in a few weeks or a couple of months, then do something else with it right away. Don't let the gift card go to waste. Instead of trying to give it to a friend or family member, you can always “regift” it to Aireal! Because of your donation, she will be doubly awarded. First, from in the mail and then the reward of buying something new!

    Aireal Anne Clemons, 130 Alton Terrace, Rossville, GA 30741
  • Amazon the Amazing

    By selecting a gift from Aireal's wishlist on amazon she gets to have a choice. A luxury we take for granted, but something Aireal seldom has the pleasure of making. If the sending of gift cards or cash donations is not for you, but you still want to contribute to her cause, please check out her wishlist!

  • Mail Box Watcher

    A real letter to Aireal. Talk about your life, and ask questions about her life. Write about how many cows you have to milk, or how many acres you are farming. Write about going deer hunting or about where you want to propose. The possibilities are endless and will mean more to her than any monetary donation! Write her a letter, and let her know you care.

    Aireal Anne Clemons, 130 Alton Terrace, Rossville, GA 30741

Sponsors

With the help of corporate sponsors, we can make great strides in improving the life of Aireal who struggles with epilepsy. We are stronger because of our sponsors. Our sponsors enable us to raise awareness, to better support her day-to-day & medical needs, and make lasting changes in her life. We celebrate our Corporate sponsors and welcome companies to join us as we fight to overcome the challenges of living with epilepsy, to stop Aireals seizures, and to find a cure that may one day save her life.

Contact

Affiliates

When a business enlists to be our affiliate, they typically send Aireal a sample of the product or service that they're selling. We then produce content or another piece of promotional material that draws interest from our large network of followers and visitors - thus positioning said item under the noses of those who matter.

As we promote a company's product or service, we're helping to bring you exposure to a much larger network of viewers than what would otherwise be possible. The added exposure drives interest, which ultimately leads to sales.

Contact

Make a Donation Today. You Can Make a Difference!
Even Small Contributions Help.

Free Epilepsy Resources

Learning how to manage life with epilepsy can be challenging for patients and their families. That's why we've compiled this list of free resources to help you and your family find additional information and support along the way.

We hope these resources help you gain a stronger understanding of your condition and make life with epilepsy more manageable.

Title Description URL View

Friends With Epilepsy

Find others affected by epilepsy near you. Discuss epilepsy treatments, medications, and share your experience.

https://www.friendswithepilepsy.com/ Go

EpilepsyDocs.com

When you're living with epilepsy, finding a well trained epilepsy specialist can be difficult. With EpilepsyDocs.com you can find local, highly rated epilepsy specialists, read reviews, and connect with epileptologists and neurologists near you.

https://www.epilepsydocs.com/ Go

WebEase

WebEase stands for Epilepsy, Awareness, Support, and Education. It is a free, web-based self-management program for adults with epilepsy.

http://www.webease.org/ Go

Texting 4 Control

A texting initiative from the Epilepsy Foundation and Care Epilepsy to assist in seizure management

http://www.texting4control.com/ Go

Seizure Tracker

Empowering people living with seizures to play an active role in their own healthcare.

https://www.seizuretracker.com/index.php Go

4 Paws for Ability

4 Paws for Ability is a non-profit organization whose mission is to place quality service dogs with children with disabilities and veterans. 4 Paws offer trainings for Seizure Assistance Dogs and many other specially-trained dogs.

https://4pawsforability.org/ Go

Angel Flight West

Angel Flight West is a network of more than 1,400 volunteer pilots who offer flights to and from medical treatment, at no cost.

https://www.angelflightwest.org/ Go

Angel Flight East

The Mission of Angel Flight East To provide free air transportation to qualified patients and their families by arranging flights to distant medical facilities, delivering supplies to disaster areas, and reuniting families during desperate times.

https://www.angelflighteast.org/ Go

More Epilepsy Resources

Numerous online resources are available to people with epilepsy and the people who care about them.

In addition to websites, many of these organizations are present on Facebook, Twitter, or other social media platforms.

Title Description URL View

Epilepsy Articles

Epilepsy Articles provides the latest articles on epilepsy research, new therapy development, and epilepsy news.

https://www.epilepsyarticles.com/ Go

Friends With Epilepsy

Find others affected by epilepsy near you. Discuss epilepsy treatments, medications, and share your experience.

https://www.friendswithepilepsy.com/ Go

The Epilepsy Foundation

Based in Landover, Maryland, the Epilepsy Foundation provides education, promotes research, and advocates for the rights of people with epilepsy.

https://www.epilepsy.com/ Go

The American Epilepsy Society

The American Epilepsy Society (AES), headquartered in Chicago, was founded in 1898 with the goal of advancing scientific understanding of epilepsy and improving the quality of life of people with epilepsy.

https://www.aesnet.org/ Go

International League Against Epilepsy

Founded in 1909, the ILAE is an international organization with more than 100 national chapters. It offers guidance and sets international standards for diagnosis and care of epilepsy.

https://www.ilae.org/ Go

Citizens United for Research in Epilepsy (CURE)

This Chicago-based group also works to increase awareness of the disorder. Its website offers educational epilepsy information, a list of ongoing clinical trials, and a list of fund-raising events that it sponsors.

https://www.cureepilepsy.org/ Go

U.S. Centers for Disease Control and Prevention: Epilepsy

This page has multiple resources about epilepsy, seizure first aid, and emergency preparedness.

https://www.cdc.gov/epilepsy/index.html Go

National Association of Epilepsy Centers

A guide to more than 230 comprehensive epilepsy centers with a search function for finding one near you.

https://www.naec-epilepsy.org/ Go

SUDEP Action

This UK-based group works to raise awareness of sudden unexpected death in epilepsy (SUDEP) and other epilepsy-related deaths.

http://sudep.org/ Go

MyEpilepsyTeam

A social networking site specifically for people with epilepsy.

https://www.myepilepsyteam.com/ Go

Let's get my love seizure free!

Aireal Anne Clemons love someone with epilepsy

Epilepsy is a central nervous system (neurological) disorder in which brain activity becomes abnormal, causing seizures or periods of unusual behavior, sensations, and sometimes loss of awareness.

Anyone can develop epilepsy. Epilepsy affects both males and females of all races, ethnic backgrounds and ages.

Each year, about 1 in 1,000 people with epilepsy die from SUDEP. This is the leading cause of death in people with uncontrolled seizures

#SUDEP is the sudden, unexpected death of someone with epilepsy, who was otherwise healthy. In SUDEP cases, no other cause of death is found when an autopsy is done.

embrace the storm